New ADI Webinars on Research Participation Announced
From Alzheimer's Disease International (ADI):
"On November 21, 2018 ADI will hold the first in a series of three webinars; creating a unique opportunity for the general public and Alzheimer and dementia associations to engage directly with health and social care professionals and companies involved in dementia research and clinical trials. As far as we know, no other webinar has provided such ‘public to professional’ access before.
Each webinar in the series aims to link and build upon the others, but they will address three discrete topics within the area of global dementia research participation. We hope to encourage lively debate and knowledge exchange; stirring interest in what is new in terms of research into dementia and searching for a disease-modifying treatment.
The first webinar, “Let’s Talk About Dementia Research: Demystifying Trials, Access and Understanding” will build on the findings from a recent Generation Program global survey of 10,000 people and ADI’s World Alzheimer Report 2018 and start at the beginning: opening with an overview and discussion on what dementia research is; why do we need clinical trials and research (many now focusing on non-symptomatic volunteers or early/mild stages); what are the practicalities for clinicians ‘on the ground; and what is the lived experience of families taking part in trials.
We will hear from the pharmaceutical industry, researchers and clinicians conducting research and clinical trials, as well as primary care health professionals supporting patients and families. Most importantly, we will hear stories of people living with dementia and their care partners about their lived experience.
And we want to hear from you. Each webinar will include ample opportunities for questions and discussion.
Follow-on webinars will drill down into issues that spark particular interest with our audience – both public and professionals. We will be guided by and respond to this interest organically, but hope to cover issues such as the divide of research opportunities between lower- and middle-income countries (LMICs) vs higher income countries (HICs) – barriers and enablers. The series will conclude with a look ahead at overcoming some of these barriers and hopes for the future."