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On-Demand Symposia

Symposia Click here to register

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BPSD Dementia/ Technology Digital Health
Caregiver Issues Dementia/ Young Onset Sleep & Healthy Aging
Dementia/ Alzheimer's Disease Cognitive Impairment Palliative Care


Behavioral and Psychological Symptoms of Dementia: a symposium of the IPA BPSD Shared Interest Forum
 Presenters: Prof. Debby Gerritsen, Prof. Huali Wang and Dr. Rob Kok

At the end of this session, participants will be able to identify:

  1. That challenging behaviors should be evaluated and managed in the socio-cultural context

Psychosocial interventions for people with dementia as strategies to manage behavioural and psychological symptoms

  • Dr. Sujoy Mukherjee:The treatment of Behavioural and Psychological Symptoms of Dementia: where do we stand?
  • Ms. Ana Rita Ferreira: Assessing unmet needs in nursing homes: a promising way to prevent neuropsychiatric symptoms
  • Mrs. Slavisa Lamounier: The Arts as a medium for improving social inclusion in dementia
  • Dr. Lídia Sousa: Music-based interventions in the acute setting for patients with dementia
  • Introductions by Prof. Lia Fernandes

Session Description:

One of the major research and clinical challenges in the dementia field refers to behavioural and psychological symptoms of dementia (BPSD) specific management strategies. Due to the lack of efficacy and discouraging results of pharmacological treatments, there has been a growing interest in the use of ecopsychosocial or non-pharmacological interventions for people with dementia to manage BPSD. However, stakeholders face a dilemma about which interventions should be adopted, because of the inconsistency between different study results and trustworthiness of scientific evidence. This symposium will provide a comprehensive overview of a range of non-pharmacological interventions, providing the best evidence on this field together with the empirical contextualization, with a particular focus on the unmet needs model and on the use of Arts and Music-based Interventions as non-pharmacological strategies for dementia care in different settings.

At the end of this session, participants will be able to identify:

  1. Management of behavioural and psychological symptoms (BPSD) should be psychological, social and environmental, with the pharmacological options reserved for more severe symptoms.
  2. Good dementia care should span medical and social care, but should also be tailored to the individual needs, background, interests and capacity of the patients.
  3. Non-pharmacological interventions have gained increased attention in recent years. These include a wide array of interventions, are recommended as first-line and should target patient, caregiver and environmental factors.

 TOPIC: Caregiver Issues  

Family quality of life in neurodegenerative diseases: Exploring needs and supports in the cross-border area of Spain-Portugal

  • Dr. Eva González Ortega:The NEUROQUALYFAM project: an overview 
  • Dr. Ermelinda Marques: Neurodegenerative diseases: analysis of the situation in the cross-border region of Spain-Portugal
  • Dr. Isabel Vicario-Molina: Family quality of life survey- neurodegenerative diseases
  • Dr. María Antonia Martín-Delgado: Health care  for people with neurodegenerative diseases and their caregivers in the health system of Castilla y León (Spain)

Session Description:

This symposium aims to present the NEUROQUALYFAM project funded by Cross Border Cooperation Programme Spain–Portugal 2014–2020 (POCTEP). The main objective of this project is to improve the quality of life of family caregivers of people with neurodegenerative disease through the assessment of their needs and support resources, and the subsequent design and optimization of high-quality resources and services that are family-centered.

 After attending this symposium, the attendees will be able to:

  1. Reproduce a research and intervention model that allows to analyze the quality of life and unmet needs of families of people with neurodegenerative diseases, as well as to plan a family-centered support system that improves their health and wellbeing outcomes.
  2. Explain the need to conduct a situational analysis of the problem of neurodegenerative diseases in the cross-border region of Spain and Portugal and apply strategies to carry out this type of analysis.
  3. Describe the main characteristics of the Spanish version of “Family Quality of Life Survey-Neurodegenerative Diseases” and reproduce the methodology used in the process of translation and adaptation of this instrument.
  4. Analyze the measures implemented in the health system of the region of Castilla y León (Spain) to improve the integral health care of people with neurodegenerative diseases and their families.

 TOPIC: Dementia/ Alzheimer's Disease 

Social context of dementia: exploring the relation between biological and social markers

  • Prof. Myrra Vernooij-Dassen: Translational dementia research on social health and cognitive functioning in rodents and humans
  • Prof. Karin Wolff-Osterman: Mapping the complexity of factors influencing cognitive functioning in dementia with a special focus on social health
  • A.Prof. René Thyrian: Tackling the challenge of dementia in people with different cultural or migration background as one aspect of social health
  • Prof. Rabih Chattat: Needs and challenges of people with Young Onset Dementia

Session Description:

Dementia is a multifactorial symptom. Exploring the influence of non-biomedical factors might help to overcome the paucity in dementia research. One of the factors to be explored is the relationship between social health and cognitive functioning and dementia.

Upon completion of this presentation, attendees will learn:

  1. The role of social health in cognitive functioning and cognitive decline.
  2. Dimensions and markers of social health related to dementia and cognitive decline.
  3. Perspectives of people with young onset dementia and their caregivers on social challenges related to dementia.

 TOPIC: Dementia/ Technology 

Building and using an apps library for people living with dementia and their carers

  • Soo Hun: Apps Library as a digital resource for people living with dementia and carers
  • Dr. Frances Duffy: Development of a CLEAR Dementia Care© App
  • Prof. Assumpta Ryan: Technology Facilitated Reminiscence in Dementia: The InspireD Study
  • Prof. Maurice D Mulvenna: Understanding behaviour of people living with dementia using apps

Session Description:

The symposium describes the context and rationale behind the Health and Social Care Board Northern Ireland taking the strategic initiative to develop digital resources to support an ‘app’ library. The initiative, part of the Dementia eHealth and Data Analytics Pathfinder Programme is developing a digital framework to enable the social prescribing of apps, initially in support of those with dementia and their carers. In this symposium, apps that have been developed are described, including the CLEAR Dementia Care © App, developed to help carers understand behaviour from the perspective of the person with dementia, and the InspireD app for individual specific reminiscence, for people living with dementia and their family carers. The final talk describes the new opportunities for researchers to employ anonymous digital data in their research studies to understand the behaviour of people living with dementia and their carers in using such digital apps.

 After attending this symposium, the attendees will:

  1. Increase their knowledge of the role of technology in supporting reminiscence for people living with dementia;
  2. Appreciate the significant role and contribution of people living with dementia to the design and testing of technologies to improve dementia care; and
  3. Increase their understanding of the challenges and opportunities in developing supportive intervention that work equally well for people living with dementia and their family carers.

 TOPIC: Dementia/ Young Onset 

Suicide and euthanasia in young onset dementia

  • Dr. Aud Johannessen: Coping with transitions during deterioration of dementia
  • Prof. Marcia Cristina Nascimento Dourado: Awareness of Disease  and suicide ideation in young onset Alzheimer’s disease
  • Dr. Rui Albuquerque: Young onset dementia: what about the family?

Session Description:

People with young-onset dementia (YOD, <65 years old) experience a great transformation in their existential lives. Living with progressive dementia and awareness of the disease raise questions about time left to live, weather life is worth living and the existential meaning of death. The aim of the study was to explore how people living with YOD cope during the progression of dementia. A longitudinal qualitative approach was used. From 2014 to 2019, ten persons with YOD were interviewed every six months for up to five years. People with dementia can describe their lived experiences for a long time after being diagnosed with the condition. They adapt and preserve a feeling of living a good life by using various coping strategies efficiently. High-quality public support is significant to assisting them with living well with dementia for as long as possible.

Upon completion of this session, attendees will be able to:

  1. Explore how people with young-onset dementia (YOD, <65 years old) cope in everyday lifes.
  2. Explore how they cope during the progression of dementia.
  3. Explore how they cope with dfferent transitions during deterioration of dementia.
  4. Develop knowledge about awareness in young onset Alzheimer's disease
  5. Understand the emotional impact and suicide ideation in young onset Alzheimer's disease
  6. Know how psychosocial interventions can alleviate the emotional impact in young onset Alzheimer's disease.

 TOPIC: Cognitive Impairment 

Cognitive deficits in special populations: challenges for the assessment and disease management

  • Prof. Dr. Elizabeta Mukaetova-Ladinska: Cognitive Impairment in Younger People: Needs and Service Developments
  • Joaquim Cerejeira: Cognitive impairment in acutely-ill medical patients
  • Dr. Ana Rita E. Silva:Cognitive impairment in schizophrenia: how age affects neuropsychological assessment?

Session Description:

Recognizing cognitive decline in an early stage is essential not only for an accurate diagnosis, but also for evaluating progression of disease, monitoring the efficacy of the treatment and in the context of research. However, the assessment of cognitive function is often a complex task as it involves the determination of meaningful changes in cognition and other clinical domains over time. Younger patients presenting with cognitive impairment represent a heterogeneous group with specific and particularly severe problems for patients, family carers, and healthcare professionals. The differential diagnosis is broader as only a small portion of them will have a neurodegenerative or cerebrovascular disease. Differentiating dementia from delirium or recognizing delirium superimposed on dementia is often problematic particularly in older patients with acute medical illness, multiple comorbidities, impaired ability to communicate and who have lack good collateral information. Patients presenting with cognitive impairment and psychotic symptoms represent also a major diagnostic and management challenge as psychosis is later life can stem from several disorders such as delirium, degenerative conditions or a primary psychiatric disorder.

Upon completion of this program, attendees will be able to identify and discuss:

  1. The broad and varied etiology of dementia in younger patients and how to organize services to provide adequate care to patients and families
  2. The challenges underlying the diagnosis of delirium and/or dementia in a patient with an acute medical illness
  3. The overlapping and distinctive features between cognitive decline associated with schizophrenia in late life from cognitive decline due to neurodegenerative conditions

 TOPIC: Digital Health 

Digital solutions for physical and mental health ageing

  • Soraia Teles: Online training and support program (iSupport) for informal dementia caregivers
  • Luís Midão: mHealth and eHealth on frailty - a review of existing tools
  • Pedro Rocha: Evaluation methodologies for digital health pilots

Session Description:

Digital Solutions have recently come into the spotlight to address well-known political, economic and societal challenges raised by the unprecedented phenomenon of population ageing. The Symposia "Digital Solutions for Physical and Mental Health Ageing" intends to debate on the application of digital solutions for promoting healthy ageing at home and supporting informal caregivers of older adults, by analysing challenges, good practices and future work in this hectic field. Technological solutions aimed at supporting informal dementia caregivers and at assessing the frailty status are presented, and the evaluation of multinational health pilots is discussed.

Upon completion of this session, attendees will be able to:

  1. Discuss the relevance of internet-based interventions to prevent or minimize negative effects of informal caregiving to persons with dementia and discover a methodological approach to culturally adapt evidence-based interventions.
  2. Learn about the existing mHealth and eHealth tools for frailty assessment, and understand characteristics, pros and cons of each tool.
  3. Understand how the evaluation methodologies can promote the innovation and scale-up processes within eHealth large-scale pilots.

 TOPIC: Sleep & Healthy Aging 

Sleep and brain health in older adults

  • Julie Carrier: Cerebral functional connectivity during sleep in young and older individuals
  • Géraldine Rauchs:Associations of sleep quality with cognitive and brain alterations in aging
  • Gilles Vandewalle: Linking Alzheimer’s disease liability to sleep-wake regulation in young or late middle aged healthy individuals

Session Description:

The aim of this talk is to present the results obtained in Caen with 2 cohorts (IMAP and AGEWELL) on the impact of sleep quality on cognitive and brain alterations. Data will be presented about subjective sleep quality, sleep fragmentation and sleep apneas.

Upon completion of this session, attendees will be able to:

  1. Recognize sleep quality as a risk factor for cognitive decline and Alzheimer's disease
  2. Understand the impact of sleep quality on cognitive and brain alterations
  3. Discuss the potential underlying mechanisms.   

 TOPIC: Palliative Care 

Palliative care in dementia

  • Annelies E. Veldwijk-Rouwenhors: Continuous palliative sedation in nursing home residents with dementia suffering from extreme refractory neuropsychiatric symptoms
  • Dr. Nathan Davies: Unravelling the complexity of decision making in palliative dementia care: Lessons from two studies developing support for family carers and practitioners
  • Dr. Kirsten Moore: Increasing recognition of pre-death grief amongst carers of people living with dementia: Developing and evaluating an animation

Session Description:

This presentation reports of a qualitative study of 3 cases of nursing home residents with extreme so-called refractory neuropsychiatric symptoms in which continuous palliative sedation was administered. In addition, the presentation will present the development and output of novel approaches to support decision making in dementia palliative care. Drawing on results from two studies a toolkit of rules of thumb and a decision aid will be presented. Lastly, the presentation will present the development and evaluation of an animation that aims to raise awareness of pre-death grief in family carers of dementia. It will draw on findings from a study of 150 family carers and their experiences of pre-death grief.

Upon completion of this program, participants will:

  1. learn continuous palliative sedation (CPS) in nursing home residents with extreme refractory neuropsychiatric symptoms is a last resort treatment.
  2. learn the administration of CPS in these cases is a delicate and ethical sensitive issue because the Dutch guideline on palliative sedation does not offer specific recommendations for this indication.
  3. learn that physicians and members of the care-team go through different phases during this process.
  4. be able to define the significant decisions which need to be made in dementia palliative care.
  5. be able to describe the factors which influence decision making dementia palliative care.
  6. be able to understand and evaluate novel approaches to support decision making with family carers and professionals.
  7. be able to describe pre-death grief in family carers of someone with dementia.
  8.  be able to define strategies used to support carers experiencing pre-death grief.
  9. be able to evaluate the role of animations for raising awareness of health topics.

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Acadia Pharmaceuticals Avanir Pharmaceuticals Cambridge University Press Otsuka Pharmaceuticals